Groups that were involved in ICD-11 Revision Process

This page provides information about the making of ICD-11. While the CSAC and MSAC are part of the maintenance process of ICD-11, the Joint Task Force and the The Revision Steering Group have ceased to exist. Several of the Topic Advisory Groups continue to exist in the form of working groups of the relevant scientific societies, and contribute with their expertise to the work of the MSAC.

The Joint Task Force (JTF) is the steering group for the ICD-11 for Mortality and Morbidity Statistics (ICD-11-MMS). The JTF provides strategic and technical advice to WHO for the finalization of the ICD-11-MMS development. The input will draw on scientific advice, where recommended by the JTF or WHO. The primary focus of the JTF is to recommend the subset of the ICD-11 foundation that will be included as codes in the ICD-11-MMS, used for international reporting, as well as how to appropriately structure those codes for tabulation and aggregation. The JTF will also provide guidance and support for the development of the ICD-11-MMS reference guide, including mortality and morbidity coding rules, the use of post-coordination in the ICD-11-MMS, and the suitability of the product for use as a classification. The JTF may seek advice, as necessary, from any other project stakeholders, such as the RSG, the vertical TAGs, the WHO-FIC Network, or other identified experts.

The Classification and Statistics Advisory Committee (CSAC) was launched in October 2017 as a part of the governance structure for the WHO Family of International Classifications (WHO-FIC), including ICD-11. It replaces the former Update and Revision Committee (URC). The CSAC is composed of representatives from the WHO Family of International Classifications Network, including WHO Collaborating Centres from different countries, NGOs, other group Co-Chairs, and additional experts selected by WHO. The primary role of the CSAC is to support WHO in the maintenance and update of WHO classifications, particularly ICD-11, through providing advice to WHO related to keeping the classifications up to date, in line with current knowledge, and relevant to the purposes for which they were designed.

CSAC will consider proposals from within the Network and from the public, and will make final recommendations to WHO on those proposals, as well as on updates to user guidance and on other related subjects.

The current ICD Revision structures are being reorganized towards a long term maintenance framework. This includes revisiting the governance design, and evolving the status quo into a new proposed structure. Among other new structures, WHO launched a Medical Scientific Advisory Committee (MSAC) at the ICD-11 Revision Conference in 2016 comprised of a number of experts selected by WHO. The main role of the MSAC is to advise on scientific content for ICD-11.

MSAC will review all proposals in parallel and will be consulted on medical and scientific questions arising from the Network, as well. MSAC is also responsible for providing advice on medical and scientific information in the foundation. Additional Special Projects may be established to develop and evaluate links to other classifications and terminologies and to advise on the associated informatics and architecture considerations. ITC may play a role in these projects.

Provided by NHS Digital, United Kingdom
Photographed by Simon Dewhurst
Christopher G. Chute, MD, DrPH, ICD-11 RSG Chair
Bloomberg Distinguished Professor of Health Informatics
Johns Hopkins Medicine

A Revision Steering Group (RSG) served as a consultative expert authority during the revision process from December 2007 through October 2016. The primary focus of the RSG was to provide guidance through reviewing the content to ensure adequate coverage of the full scope of health care diseases and related health conditions while addressing the needs of users.

The RSG is composed of the Co-Chairs of each content and classification Topic Advisory Group, as well as the co-chairs of the WHO-FIC Network and the WHO-FIC Committees and Reference Groups. The RSG is coordinated by a Small Executive Group known as the RSG-SEG, which includes the RSG Chair as well as six other individuals with broad areas of expertise drawn from the RSG.

Topic Advisory Groups served as the planning and coordinating advisory bodies for specific issues which are key topics in the update and revision process, namely Oncology, Mental Health, External Causes of Injury, Communicable Diseases, Non-communicable Diseases, Rare Diseases and others.

The primary charge of each group was to advise WHO in all steps leading to the revision of topic sections of ICD in line with the overall revision process. This included, in particular, advising on the development of various drafts of topic segments in line with the overall production timeline, reviewing and commenting on proposals from other stakeholders and experts while consolidating all input to achieve consistency across groups and areas, and many other tasks as outlined in the Terms of Reference for TAGs.

More than 200 scientists and other experts from more than 35 countries and all WHO Regions have contributed to the work.

An external review of the ICD-11 Revision has been completed in 2015. The report noted the progress in the ICD Revision, and made clear recommendations about forward progress in the revision.

WHO welcomed the constructive messages of the Report of the ICD-11 Revision Review. WHO initiated the second phase of the revision process, acting immediately on the Review’s recommendations.

In line with the updated recommendations, WHO updated the ICD-11 project plan and associated timelines.

The process in phase 2 was supported with extensive advice by the then newly formed Joint Task Force. The end of mission report shows the achievement of the recommendations that were made in the above mentioned review.

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