Global health ethics

WHO Expert Advisory Committee on Developing Global Standards for Governance and Oversight of Human Genome Editing

Declaration of interests

Dr. Françoise Baylis

Professor Baylis has given public lectures on this topic, been a rapporteur at a meeting on the subject, reviewed and written about it.

Dr. Alena Buyx

As a member of the German Ethics Council, Professor Buyx has given evidence and advised on this subject matter. She currently leads the Council’s Working Group on Human Germline Editing.

Dr. Alta Charo

Dr Charo has given evidence before the US Congress on indirectly related topics. She has also published on this subject area.

Dr Hervé Chneiweiss

He is the Chair of the Inserm Ethics Committee that has produced a report on the subject area. He is also vice-president of ARRIGE, the Association for Responsible Research and Innovation in Genome Editing which was launched in March 2018.

Dr. Margaret Hamburg

Dr. Margaret Hamburg has declared investments in a number of nonspecific and diverse investment funds, the composition of which she does not monitor or control. Dr. Hamburg is also on the board of Alnylam Pharmaceuticals.

Professor Kato

Professor Kato served as a member of the organizing committee of the Second International Summit on Human Genome Editing, held in November 2018.

Dr. Robin Lovell Badge

Is a member of the UK’s Human fertilization and Embryology Authority’s Scientific and Clinical Advances advisory committee that has an interest in this area and for which he receives a per diem. He has also reviewed reports and been involved on committees that have deliberated on this topic for which he has received travel expenses.

Jamie Metzl

Jamie Metzl has spoken publicly on the subject area of the human genetics revolution, these engagements have included receiving speaker fees from a variety of organisations from companies through to consultancies. He has also written on the subject and is on the advisory board of TMRW Life Science.

Dr Anna Sanchez Urrutia

Dr Anna Sanchez Urrutia has given evidence to the National Bioethics Committee of Research of Panamá of Panama on this subject.

Dr. Jacques Simpore

Professor Simpore has participated in conferences for the African Society of Generics (SAGE) and the Institute of Health Sciences Research (ICES) at the University Ouaga I in Burkina Faso on the subject area.